We're back!!! The Peanugga is doing great.....busy weekend last week we went to Medford, WI to watch auntie Shyanne's first gymnastics competition, it was fun. Of course, after a 4 hour car ride there Madilyn only made it a 1/2 hour before I had to bring her and grandpa to the hotel so she could chill. When the Peanugga decides she's had enough, she definitely turns into the boss.
Monica (physical therapist) was thrilled at the progress she has made with tolerating tummy time and the sitting while she's playing. When the BHK home visitor came this week she brought us the "lady bug" that Monica recommended. It's a lady bug that Madilyn goes on her tummy on and it swivels on top of a playmat with toys to occupy her. She actually does okay on it. The only way we can get her on her tummy is if she's not right on the floor and she has to have something to amuse her or she's not staying there. If she's right on the floor she also just flips herself onto her back so it defeats the purpose. She needs to do the tummy time and use her arms so we can eventually get her crawling. Someday it will happen, hopefully within the next 6 months or so. It would be awesome to have her sitting and crawling by the time she turns 2.
Feedings are progressing too. Liz (the feeding/speech therapist) has us doing spoon feeds at the same time we are tube feeding her so she learns to associate the food going into her mouth with the tummy getting full. She explained to us that the reflexive action of eating is learned in the first few weeks of life and when they don't get that it needs to become a learned behavior. So we learn, very patiently. The GI doc upped Madilyn's feed amounts last week after having a 2 ounce weight loss and this past week she only gained an ounce. She's 13lbs 5ounces now and the GI doc said if she doesn't have substantial gain this coming week they will up them again. This worries me because she pukes.........it's not quite as bad as I expected but it's still puke......the weight gain and progress is slow and frustrating......it takes tons of patience and positive thinking our part as well as diligence in tracking, feeding times and monitoring everything. She's growing though and getting more active every day and we have an appointment with the GI doctor in DePere, WI on Friday the 12th. I am hoping that she's pleased with our progress.
The few days of sunshine and nice temps were great for us. We managed to get out for a couple of walks and Madilyn absolutely loves her stroller rides, for that I am very thankful. It now landed her with a cold but hopefully it'll pass quickly. On one of our walks we went to the grocery store and I was very thankful for the plastic weather cover on the stroller, everyone wants to touch Madilyn, this bothers me. I understand that everyone loves her and follows her progress I just wish they wouldn't touch her. I wish that everyone could understand the health risks with a baby like Madilyn, she gets sick so easily and then it sets everything back. Therapy progress and feedings go ten steps in reverse when she's sick so getting out publicly is difficult when everyone wants to touch her. Come say hi and ask about her but please don't touch or get right in her face. Germs that people carry that don't bother them can make Madilyn very sick very quickly. I joked with my husband that we need to figure out a fan system for inside the weather cover so in July she can still be out in her protective little bubble without roasting....lol
Happy Easter to everyone today!! Easter is about counting our blessings and being together. We are definitely counting our blessings!!
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