Yesterday was crazy busy between the monthly doctor visit for Peanugga's Synagis (RSV prevention) shot, parent/teacher conferences for the older kids and gymnastics practice for Shyanne (my 11 year old). Madilyn does really well with the Synagis shots and thankfully they are only 5 months out of the year. Parent/teacher conferences went really well which makes me happy to know that our older children are doing well in school even with all the changes in our house in the past 6 months.
Today I was very happy that I didn't have to leave the house.......it's the little things like this that mean the world to me sometimes. Home Nursing came to visit this morning and Madilyn is up to 12lbs 13ounces!!! WOOHOO!!! Every ounce gained is a struggle so to see her gain 11 1/2 ounces in two weeks is HUGE and makes us incredibly happy. I'm praying she hurdles the big 13 next week. I was also able to coordinate 3 Milwaukee check-ups into 1 trip in the end of May. We'll be there for 3 or 4 days but at least it's only one trip. While we are there we will get Madilyn's annual genetics and neurology check-ups and then the eye exam under anesthesia to track her retina's. We also got the call today about additional physical therapy being added so in addition to the one that comes to our house every other week we'll be going to weekly appointments near our local hospital. I will find out next Friday at our first appointment with her if the new therapist is also the one that will help with the feeding issues..............fingers crossed that it is.
Madilyn showed off for the home visitor from BHK that came today. Normally she won't sit on her butt unless I am singing but today the worker brought lights and sounds bongo drums and Peanugga actually sat on her behind on the floor with only slight help from me and played the drums for several minutes. This is HUGE progress for us. I can actually see now that she will sit on her own hopefully in the not to distant future....all the struggles and horrible singing are starting to pay off. There is nothing better than hearing how thrilled the home visitors/therapists/doctors are with the progress we are making.
Feedings went really well last night/today too. Only two spit-ups which is a big accomplishment after the past several weeks. We are up to 60ml feedings every 2 1/4 hours. It's nice because it leaves a lot more therapy/play time when the feedings aren't so close together. All in all today was an extremely good day......and we love good days.
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