Specialist/Eye Doc appointments

We were referred to a pediatric ophthalmologist since Madilyn has maintained vision in her right eye for so long (she is blind in her left eye)...........we saw Dr. Mark Ruttum from Children's Hospital on February 14th.  He is putting the peanugga into glasses.....she is severely near-sighted in her right eye so he is hoping the glasses with widen her range of vision.  Her range of vision currently is only a few inches from her face otherwise it's just blurry.  We are hoping the glasses make a big difference and that they will in return help with the sitting and hand/eye coordination.  I put a post on facebook about her insurance not covering them and we have some amazing support in our community because a few people have sent donations to help pay for them.  My husband thought it was funny cause every time someone else made a comment about helping I cried.....I never used to cry much...not until Madilyn came along.  Now, I cry all the time..usually happy tears though, so that's all right.

The Special Needs evaluation was on February 15th in Milwaukee.  We met with the doc, physical, occupational and speech therapy.  They therapists all evaluated Madilyn and placed as follows:
Cognitive (play skills): 4 months
Gross Motor:  4 months
Fine Motor:  5 months
Speech (receptive): 7 months
Speech (expressive): 8 months
then the doctor came in to talk to us..........................she explained that they were shocked after the last evaluation (last June) that Madilyn could do anything at all.  They expected her to be almost vegetative because she wasn't being properly nourished or worked with........they called it "unintentional neglect".  They also told us the Madilyn is now labeled as severely developmentally delayed and that she wasn't born this way, she was made this way because she spent the first 11 months of her life on her back and not being worked with.  While this was not shocking at all it was devastating to hear.  I always hoped that no doctor would ever confirm my worst fears and she did.  On a good note she said we can overcome some of it...it'll just be 5 times the work............so we work........and she still hates the butt........so I sing...